Delay!

By -
Having delays in every way right now🤪First: Charlotte came down with a chest cold and so Duke decided to reschedule her scans for sedation safety reasons. So full work up scans will be in March 17-18 and pending clear scans we will begin Vaccine study in NY March 24! Second: we got a new four legged addition to our family last weekend and it’s taken over our lives🤪Meet Chase, our 8 week old Charcoal Lab pup and new best friend! Once he gets this sleeping at night in his crate thing down, it’ll be smooth sailing...maybe😆.

It feels so good to look forward to something like having a new puppy and transitioning to maintenance therapy. Once we see those clear scans, life will feel a little lighter for our hearts. Brian and I have felt pretty bruised and battered which is nothing compared to what our sweet girl and her body has had to go through and recover from. But our sprints remain strong and hopeful, our family and our dreams in tact. It’s amazing what a little grace from God can do.

I promise to update more and on time! Sorry for the delay in posting this one. I had written some of it and then the puppy took a nap so I did too😂Please keep those prayers going for our Charlotte so she can keep on moving forward!❤️🌈 Here’s a little video clip of Charlotte The Cutest Dog Trainer😆

Bringing their new best friend home


Chase, our new buddy

Charlotte, the dog trainer
                                                   https://youtu.be/IAOJnzfSPiY

Comments

Post a Comment

Popular posts from this blog

Reliving June 13

By -
Image
Today in 2019, was probably the hardest day of my life. You might have thought that would have been the day she was diagnosed or maybe that scary time we had during Charlotte’s transplant, but it was today. We snapped this picture below waiting for Charlotte’s doctors to come into her examination room during her standard check up at Duke. Mere minutes later, we saw more than the normal 4 feet in front of the door (the oncologist and NP that would see her). When the door opened and child life was there—Brian and I instantly knew. Child life had come to distract Charlotte so we could talk to her doctors. The world went into slow motion and I don’t know how I didn’t hit the floor if I’m honest. Brian’s face instantly drained of color. We knew immediately her scans had shown her disease, her cancer, had returned.  After all she had been through, all we had seen, all we had survived as a family…this day drained the hope out of me and I can still have a visceral response remembering it. ...
Read more

Home again home again

By -
Image
We were discharged and are home tonight😊 She is feeling wonderful and is actually in rare form being beyond silly with a ton of cabin fever type energy haha. So grateful this fever turned out to be a quick temporary hospital stay with nothing major. Perhaps it'll give her a little extra confidence for next week when we are admitted for round 3 of chemo. This next round has 2 new chemotherapeutics she hadn't been given yet so a whole new bag of tricks. She will be hospitalized for the next round because it requires so much hydration before and after the chemotherapy. Tomorrow we return for an appointment and hopefully get the final information with regards to harvesting this week or waiting until next round. And just so you know...our little fishy friends were still there swimming happily together❤️ Wanted to include a picture of our fish friends because so many of you told us how much you loved the fish story I posted a couple weeks ago☺️ Passing the time with wet pape...
Read more

Hand me downs

By -
Image
I miss writing here. There’s a lot I wrote in this space and a lot I think I didn’t. Some of the “didn’t’s” were because I was afraid of putting something there, out loud, even if just in writing that might make it true. One of those things I have recently thought about as I was getting Taylor’s old hand me downs out of our attic for our Charlotte to wear this summer. I remember a time where I put Taylor’s clothes aside and I would cry. Privately, up in our attic space we have. I cried to God that if I only could have one prayer answered, could it be that Charlotte would wear these one day? Because then that would mean she is 8. It meant she got to grow up. Hand me downs were so hard for me. It made me face a fear that she wouldn’t get to wear them. That we could lose her. That I would be faced with a day of seeing them again only to donate them to another child who gets to live. And now fast forward to today. There are parents facing that reality. And we didn’t. Her story still being ...
Read more