Best Day So Far!
Charlotte has had the best day so far since she has been hospitalized. She has begun to talk and smile with the nurses here and really come back out of her protective shell she has created. She actually wanted to play today. Fevers are really spreading out (about 36hrs). That and getting some nutrition via feeding tube is helping her feel better. The fluid is only a minor concern at the moment but we still need other issues to resolve such as a sustainable white blood cell increase for several days and they are also watching her heart rate closely as she is still tachycardic (rapid heart rate) which could be due to several factors at this point. Team is working to isolate the main cause now but it could simply be the tumor itself which impacts adrenal glands. Wanted to share a few happy pictures from today: after sponge bath, Popsicle, art and reading with child life here. These will be the last days for pictures with her "current" beautiful hair. It will be fall