Charlotte's Journey

Buying time. There are many parents being told that they are just buying time. Their child's cancer continuing to remain or grow despite treatment. They are left with difficult decisions to make regarding which treatment could benefit without doing tremendous harm. Quality of life decisions.  Trying to answer the question of what gives them a good chance for more time without causing damage that would shorten their time or impact the precious days that remain. As I write this, parents are hearing those words, sorting through those decisions and the grief that accompanies. There are two in particular. I have grown attached, my heart pulled towards both Elijah and Beckham. I have written occasionally about Beckham, but not as much because his family is a bit more private and shares only on occasion. Beckham is 11 and very close with his sister Navy who is just about 1 year younger then him. I spent some occasional time with them while at MSK over our time in treatment there, but it i

 Charlotte’s scans remain CRYSTAL CLEAR❤️🌈Before we knew results but after our appointment, we blew off the rest of the school day and grabbed a mocktail 😆 and lunch and explored just a corner of the beautiful Sarah P. Duke Gardens next to the hospital. Charlotte loves bamboo trees and she found a forest of them along with a pond full of wonders. She collected some treasures and we carved our names and wandered amid the beauty. God is so near when we stop to try and feel him. Praise the lord. Our baby girl will keep going and keep moving towards the direction of our prayers. Thank all of you for your love and support and prayer! More to update very soon!!

 It’s scan week. If I could bottle the confidence this one often has and drink it during this week…. First scans off clinical trial and all treatment.  This picture was snapped while we took the vacation we had planned to take right before Charlotte relapsed. We swept the kids and Brian’s mom away to Atlantis in the Bahamas over a long Mother’s Day weekend and had a complete blast. We had to navigate through international covid precautions and not everything was up and running necessarily as they were keeping numbers low at the resort, but we just felt like we needed to GO and celebrate like we always wanted to do. And when I look at the bubble of hope and energy that runs around before me, the full of confidence sweet heart of a child in this picture, it’s impossible to believe she can be anything but well and fine. But we need prayers that her scans continue to be clear of any evidence of neuroblastoma. We are not naive, but our hope transcends our fears. And we feel each of you with