Getting some sleep and planning on a wagon ride!

By -
Good morning! They think we might get to a room later today! Steps closer to coming home! Her X-ray showed improvement with lung fluids. Still fighting a fever and needs oxygen. Finally got put back in solids and ate some bites of spaghetti last night. We both slept better last night too. We didn't get out yesterday so maybe today. We have a wagon and are hoping to take her for a ride maybe even to see the helicopter on the roof:)


Got a little kick in the gut with some news specifically regarding her tumor genetics. I was really down and having a hard time last night. But woke to a new day. And Brian has a contact in Cincinnati who put him into contact with a leading researcher for high risk NB and after talking with him we feel better about not just our current plan here at Duke but also about all the new research that hasn't even been published yet which has MUCH better prognosis outcomes for someone like Charlotte. I really needed to hear that and the timing of this doctor calling us could not have been better. It was heaven sent. The current information published does not include several very important "steps" of her treatment which she will get and greatly improves her prognosis. Holding on over here. 

 C is down in the dumps though and wants to go home. From Jen on March 23, 2016 @ 9:00 AM EST

 Reynolds Family Village, if you have a moment today please post or send a funny video or picture to lift Charlotte's spirits.  :)

The Reynolds family has requested that this blog and any postings are NOT SHARED on social media at this time.
Location: Duke Hospital, Durham, NC 27710, USA

Comments

  1. UnknownMarch 23, 2016 at 11:24 AM

    Love you so much Charlotte! Hope you get to see the helicopter today. Praying hard. All day, every day!

    ReplyDelete
  2. Runner GirlMarch 23, 2016 at 11:46 AM

    Cheers for a wagon and helicopter!!

    ReplyDelete
  3. MTMarch 23, 2016 at 11:58 AM

    Funny cat videos always make me laugh :)~ Love you all!! Wish I could just give you a big squeeze! XOXOXOXO

    ReplyDelete
  4. Ashley NMarch 23, 2016 at 12:26 PM

    Hooray for wagon rides in the sunshine! Cheering you on Charlotte, and blowing you all lots of kisses!

    ReplyDelete
  5. ShelleyMarch 23, 2016 at 4:21 PM

    when my MIL said she has seen some of her kids struggle in the beginning and then turn around beautifully my faith was reenergized.. I know its going to be a tough road but with helicopters and wagons I can tell you all are going to make the best of it. if you need face time friends let us know, nate can talk her ear off. HUGS and WELL WISHES!!!

    ReplyDelete
  6. ppa1dayatatimeMarch 23, 2016 at 5:45 PM

    "The current information published does not include several very important "steps" of her treatment which she will get and greatly improves her prognosis." BEST NEWS today! Yeii!

    ReplyDelete
  7. Erin WallaceMarch 23, 2016 at 6:37 PM

    Charlotte, we are all sending you lots of love and hugs from afar. Couple that with lots of prayer and I'm sure you'll come out strong.

    ReplyDelete
  8. UnknownMarch 24, 2016 at 11:46 AM

    Prayers lifted for Charlotte and her entire family. May God give you the strength you need to fight the good fight. Miracles happen everyday and everyone who knows or hears of your need will be praying that you receive yours! Thank you for keeping us abreast of Charlotte's status. All my love, Deborah Mott

    ReplyDelete
    Replies
    1. jenrvballMarch 24, 2016 at 5:18 PM

      Thanks so much Ms. Mott and for being there for my mom too

      Delete
  9. UnknownMarch 24, 2016 at 4:13 PM

    Thinking about you constantly sweet girl! Keep on fighting. Love you!
    Doty, Rob and Drew

    ReplyDelete
  10. jenrvballMarch 24, 2016 at 5:17 PM

    💗

    ReplyDelete

Post a Comment

Popular posts from this blog

ROUND 2 under way

By -
Image
It was exactly 4 Monday's ago. We left our pediatrician and ended up here at Duke Children's just about this time of day where we were about to receive Charlotte's cancer diagnosis. It was any parents worst nightmare as we came to learn and understand this diagnosis. It feels like 4 months ago. We are still coping and feeling our way, but never in a million years could I imagine being in this "place" that we are today, emotionally and spiritually. We are still coping and going through the grieving stages, but hearing the news today that Charlotte is healthy enough to begin round 2 was great news. A couple weeks ago, hearing that your child needed chemo was gut wrenching but today it is music to our ears. It means Charlotte has recovered from round 1 and is ready to continue to fight and heal while we all cheer her on. Her spunky spirit is back. She had a wonderful, restful weekend home playing with Taylor and Parker and also getting to see some family and a few f...
Read more

A fresh start for round 3

By -
Image
You know those weekends that you just don't want to end? The ones you want to freeze in time? It was a simple one and usually not even worth a mention. Because all we did was spend time together playing at home, saw some friends and family, enjoyed each other, just low key fun and quality time. It was just one of those weekends that we all usually take for granted and really WE SHOULD. I mean, as parents, yes, we all try to soak up the sweet moments and memory making times with our children. But we shouldn't have to relish every moment where our children are feeling happiness. We shouldn't have to soak up every day we can all be together. Or embrace each day our child feels healthy enough for normal play. No one should have to live their entire lives living in the sweet moments for fear it could all be pulled out from under them. But we are learning that this is our new reality. That the normalcy we use to take for granted is now precious time because as we travel down this...
Read more

Reliving June 13

By -
Image
Today in 2019, was probably the hardest day of my life. You might have thought that would have been the day she was diagnosed or maybe that scary time we had during Charlotte’s transplant, but it was today. We snapped this picture below waiting for Charlotte’s doctors to come into her examination room during her standard check up at Duke. Mere minutes later, we saw more than the normal 4 feet in front of the door (the oncologist and NP that would see her). When the door opened and child life was there—Brian and I instantly knew. Child life had come to distract Charlotte so we could talk to her doctors. The world went into slow motion and I don’t know how I didn’t hit the floor if I’m honest. Brian’s face instantly drained of color. We knew immediately her scans had shown her disease, her cancer, had returned.  After all she had been through, all we had seen, all we had survived as a family…this day drained the hope out of me and I can still have a visceral response remembering it. ...
Read more