Charlotte's Journey

The old adage “no news is good news” holds true for Miss Charlotte at the moment. I had to press Memorial Sloan Kettering team with a few emails and a cattle prod ☺️ to have them get back to us on their read on Charlotte’s latest scans in December. I’m sure they reviewed them earlier then we heard but since they “had no concerns”, quoting their email, we celebrate that our girl does in deed have clear scans 3 months post treatment. Are we really going to be going through this breath holding time every 3 months for a year? And then every 6 months for a couple more years? I suppose we will but I suppose that’s all part of being on this side of the battle and we are truly just greatful for the fight, for the waiting, for the worry, and for all the days LIVING in between it all. Life will never be the same but in some ways it is just BETTER. Speaking of never the same..,cue Charlotte’s FIRST non treatment related fever she spiked yesterday. It’s almost unheard of, how healthy she has bee

I have so many half written pieces...but I think sometimes, when something strikes me and I need to just sit down and write, I get into this tunnel vision mode and I write and write. I guess I had so much more time for that when we were hospitalized on and off over that year and a half. Life pausedin a strange way during inpatient treatments. There was more quiet time. Time for reflection. Time and space for me to listen, really listen and hear and feel. That’s when those strange moments of peace and clarity could hit. God could reach me because I was still. And I was wanting. Needing. I was inviting him during those times. Or maybe we were at home but it was late at night, my mind racing and words could pour out about what we were witnessing and what Charlotte was going through. Anyone who has followed this page since the start could see how it began as matter of fact updates about Charlotte to worried parents trying to rally the troops for prayers to shared moments of amazing grace t