Infusing normalcy

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Somehow in the midst of it all, today I think I snapped 2 of what will become a couple of Brian and I’s favorite pictures. So I wanted to share them.
1. Last night at the swim team banquet celebration, one of our village members arranged for everyone to have rainbow leis and displayed these balloons with a sweet poster cheering on Charlotte. Look at our girl enjoying them this morning. Somehow her spirit parts all the storm clouds.

2. She is not feeling any side effects from this new chemo yet and this evening was perfect weather so Brian and I thought...why not! (She can be deaccessed daily if we want—have her “tubies” removed and replaced the next day which surprisingly does not cause Charlotte any stress at all to be accessed now. She is totally use to it as long as they use a numbing spray and count to 3 before they insert the needle into her port. She’s incredible in this way as most children cry and scream) Soooo we finally got our on R Happy Place tonight for a dinner cruise and beached our boat for some swimming while watching the sunset. It was pure magic. We are so grateful for these moments, now more then ever I feel. Time can’t freeze so we soak it up and relish in these moments God gives us. Please God, continue to surround our sweet girl and our family with your loving arms. We sure felt you holding us tonight. I mean, look at the peace we felt amid it all. That is God’s grace
#familystrong



R Happy Place: Fav pic 1

Fav pic 2 šŸ˜

A few more of today, day 2 of chemo with some normal life trying to be infused








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