Charlotte’s hat

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Tuesday, we took a long walk with our grandparents to the hospital Chic Fil A. Charlotte wasn’t feeling the best and was more tired without much appetite (due to anemia from low red blood cells). She wanted the food bag to make a puppet with back in our room but when we turned around, she was wearing it on her head like an Abe Lincoln hat. She had seen her reflection in the window and I believe covering her sparse head of hair. But what she did in that process was remarkable because she walked back the entire way with this Chic Fil A hat and a huge smile. Dozens and dozens of people stopped and smiled and said a kind word and she nodded and beamed her smile and kept walking. Schuey, Neal, and I will never forget that for as long as we live. Please God help her spirit to continue to rise above the pain she’s going through. With all our fears bubbling quietly under the surface, I didn’t realize how hard this part would be for her until we got to it.
Today, she’s shy and embarrassed, asking to wear a soft knit cap that was hand made and donated to the oncology children here. We will begin to explore what head covers she might be comfortable with (considering we live in NC where it is super hot in July and Aug we will see). But she is feeling better after a blood transfusion in the early morning hours as we await her bone marrow to awaken and kick back in. For now, we are holding on trying to find and feel every single blessing while we are going step by step on this curative path with our Charlotte. Grow cells grow❤️🌈


Her spirit 💕



Playing airplane launch outside on free from IV pole time 

Outside freedom at duke 

Wears the cap at all times now. 

Outside grass time!

The first day she started losing her hair. She seemed only  curious at first and  didn’t realize in 3 more days it would be all gone. The speed of which she lost it has been a bit traumatic for her. She is only 5 and is trying to understand how to process this. I snapped this pictures while having a flash back to the first time she realized she was losing her hair, back when she was 2. I almost deleted it thinking it was wrong to capture this private moment of hers. But then again I’m also trying to capture her story, for her. One day. And I hope she is proud of every second of it. 

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