Best Day So Far!

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Charlotte has had the best day so far since she has been hospitalized. She has begun to talk and smile with the nurses here and really come back out of her protective shell she has created. 

 She actually wanted to play today. Fevers are really spreading out (about 36hrs). That and getting some nutrition via feeding tube is helping her feel better. 

 The fluid is only a minor concern at the moment but we still need other issues to resolve such as a sustainable white blood cell increase for several days and they are also watching her heart rate closely as she is still tachycardic (rapid heart rate) which could be due to several factors at this point. Team is working to isolate the main cause now but it could simply be the tumor itself which impacts adrenal glands. 

 Wanted to share a few happy pictures from today: after sponge bath, Popsicle, art and reading with child life here.  

 These will be the last days for pictures with her "current" beautiful hair. It will be falling out quickly very soon. We will walk the kids through this very matter of factly and of course use our ability to tease daddy in the process because Charlotte's hair will grow back as she gets better but daddy's won't! Ha! This part is bringing out another emotion in me that I can not name. Perhaps it's just that the hair loss is an outward sign of this disease that I hate and wish never touched our sweet girl. It's also the sentimental mommy in me. The one who saves a lock of hair after a babies first hair cut...Brian and I have brushed that hair so lovingly. I run my fingers through it daily and wonder when she will ever leave her pony tail or bows in:) 

 But we will look forward to watching her heal and regrow her hair knowing that the little girl who wears it is happy, healthy, and loved.

I want to go home, but does that mean I can't have a Popsicle whenever I want?!

Comments

  1. EvansMarch 31, 2016 at 9:42 PM

    Aww sweet baby...love that her expressions and personality are coming back around!!! The hair is temporary her life will be forever!! The will grow back and be Even more Repunzelesque!! 💖💖

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  2. UnknownMarch 31, 2016 at 9:48 PM

    Love her
    So great and so strong
    Double up her feeding. Nourishment Is working
    PG
    Prayers

    ReplyDelete
  3. Kevin SweeneyMarch 31, 2016 at 10:49 PM

    Your baby girl is gorgeous, we are with you every step of the way! Keep that beautiful smile and spirit beaming, Charlotte!

    ReplyDelete
  4. UnknownMarch 31, 2016 at 10:52 PM

    So wonderful to see her beautiful smile. We love you Charlotte! You keep fighting and we'll keep praying...all day, every day.

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  5. Jenn SullowayApril 1, 2016 at 7:23 AM

    I am so happy to see her sweet smile! Thinking of you guys daily and sending you lots of love and prayers!! xoxo
    Jenn, Frank, Sam

    ReplyDelete
  6. InnaApril 1, 2016 at 8:34 AM

    What a sweetheart! So happy to see her smile.

    ReplyDelete
  7. UnknownApril 1, 2016 at 9:12 AM

    It is great to see that smile! I say she can have popsicles whenever she wants at home too :)Thinking about all of you everyday. Lots of big hugs for the entire Reynolds family! Love you all!

    ReplyDelete
  8. Erin WallaceApril 1, 2016 at 9:45 AM

    This update makes me smile. So glad she is a little more herself now. May every day to come be the Better than the day before.
    Lots of love.

    ReplyDelete
  9. UnknownApril 1, 2016 at 10:10 AM

    So wonderful to hear the great progress! Her pictures are so precious, and to see her smile again is terrific!! She is always in our prayers for continued healing, and for all of you as well. Love and Hugs.

    ReplyDelete
  10. Terri sweeneyApril 1, 2016 at 11:10 AM

    Hi sweet Charlotte. Logan and Ella's Granda and Nana here. Praying for you every day. Can't wait to give you a big hug. In our thoughts and prayers Brian and Jennifer. I posted quite a few times but they never seem to come thru. Kevin just told me another way to try so hope this gets to you. Asking Our Blessed Mother to watch over each of you and your precious three.

    ReplyDelete
  11. Tim and LaniApril 1, 2016 at 1:36 PM

    Sweet, sweet girl. Thank God she had a better day. Continuing to pray for her to be able to at least temporarily return home before the next round. Love you all.

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  12. ~ChristinaApril 1, 2016 at 9:13 PM

    Love hearing about such a great day! Taylor made her the most heart felt card today at school, I hope you got the puppet video she made for Charlotte also! Praying for you all! ~Christina

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  13. ~ChristinaApril 1, 2016 at 9:38 PM

    Love hearing about such a great day! Taylor made her the most heart felt card today at school, I hope you got the puppet video she made for Charlotte also! Praying for you all! ~Christina

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  14. UnknownApril 1, 2016 at 9:42 PM

    Precious girl! What a great smile! Her hair will grow back and will be even more beautiful than it is now. Xoxo

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  15. UnknownApril 1, 2016 at 10:14 PM

    I love her smile;) so great to see. I think the Brian no hair is a great play;) you can buy them matching wigs one day! She would love that😍 Pink sparkly wig, I'm thinking😊 Prayers for many more days like this.

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  16. Kelly MahoneApril 2, 2016 at 1:17 AM

    So glad to hear she is feeling a little better and more like herself!! Such an amazingly strong and beautiful little gal--and such a trouper for sure. Your family in Indiana is thinking of you all every day. Prayers and thoughts sent your way. SO hoping she can come home soon!!! Fingers crossed! (Have been getting/reading the e-mailed updates from the blog but keep forgetting I can post a message too!) Love you all--Kelly

    ReplyDelete
  17. Annette StackApril 2, 2016 at 10:10 AM

    Of course she has formed a protective shell...I would too! Good for you Charlotte :) Bless her little heart and God love her and watch over her! I am sooo happy to see that beautiful smile and read that she had a good day! I am sure it is so hard not being home together as a family. Big hugs for you ALL. Thank God she is exactly where she needs to be to get better. Duke is the BEST for sweet little Charlotte as she fights this and beats it. We will have a HUGE party once she beats this! Know that you are in our hearts, thoughts and prayers constantly. Hang in there and remember...one day at a time. You've got this. Love you all xoxoxoxo

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