Bumps in the road at the starting line

Brian and I keeping waiting to hear any good piece of news to come from her medical team as we cope with this diagnosis and begin treatment, but we were dealt another blow today. Her doctors do not feel she will be ready for release (due to many factors) for another 10-14 days....I want to believe she will surprise them all and be in a good place to come home much earlier then that. But we do not know and they want us to be prepared for her to be here for that length of time. She has been out right refusing anyone to try and cheer her up. Physical activity has been limited but is really important for her lungs and overall help. I took her kicking and screaming into a wagon ride but within a few minutes she settled down and quietly pouted. I wS honestly happy to hear her crying and fighting as she has been so lethargic. She has very little interest in trying to be cheered up at the moment but now that she had a break from the actual chemo perhaps she can be on the recovery side and start to feel more like herself once we over come some of these obstaes keeping her from getting home. Thanks again everyone for everything. You are each playing such a big role in how we are coping and pulling through at this time

Comments

  1. Jennifer, as today as Holy Thursday, just one day before He died on the cross, it comforts me to know He is suffering alongside your beautiful baby. Please count on our prayers as Charlotte gets well. God bless you always! Love, Colleen Murphy Duggan

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  2. Thank you Colleen. We are feeling everyone's prayers

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  3. I forgot to mention that we were moved back to a room yesterday so that is good news! We have a door again and a quieter place:)

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  4. You will get through these bumps and Charlotte will be out of there in no time! When I wake up in the middle of the night my thoughts go right to Charlotte. I say an extra prayer that you all are having a peaceful night and able to get some rest. You're always on my mind each and every day. Much love to you all xoxo

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