Raining rainbows 🌈

By -
We asked for a prayer and got over a dozen rainbow pictures messaged to me of one impressive rainbow in our town and over our home yesterday evening! This morning we woke to a diagnosis of C. Diff, a nasty infection causing her diarrhea, and today, belly pain. Then a few more rainbow pictures were messaged to me from some other village members who are caring for and praying for our girl.  Feeling so much love and hope I had to share them❤️🌈 When we need a rainbow but can't find one from our view at the moment...there you all are, sending us one.

So, although a positive culture for C. Diff was not what we hoped, it appears the medication we started yesterday just in case is working. Things have slowed down over night. She's having some belly pain today with a fever and the team wants us to stay and monitor her for another day with the hopes we can be discharged tomorrow. So we will continue this new medication, keep her hydrated and have a restful day here in the hospital best we can. I'm currently cuddling her in her bed while she's dozing while typing this on my phone, and scrolling through all the rainbow pictures. I mean, how amazing is this?
Our back porch!

Our backyard 
Our neighborhood and town



















2 more this morning from VA and MD ❤️



Comments

Post a Comment

Popular posts from this blog

ROUND 2 under way

By -
Image
It was exactly 4 Monday's ago. We left our pediatrician and ended up here at Duke Children's just about this time of day where we were about to receive Charlotte's cancer diagnosis. It was any parents worst nightmare as we came to learn and understand this diagnosis. It feels like 4 months ago. We are still coping and feeling our way, but never in a million years could I imagine being in this "place" that we are today, emotionally and spiritually. We are still coping and going through the grieving stages, but hearing the news today that Charlotte is healthy enough to begin round 2 was great news. A couple weeks ago, hearing that your child needed chemo was gut wrenching but today it is music to our ears. It means Charlotte has recovered from round 1 and is ready to continue to fight and heal while we all cheer her on. Her spunky spirit is back. She had a wonderful, restful weekend home playing with Taylor and Parker and also getting to see some family and a few f
Read more

Reliving June 13

By -
Image
Today in 2019, was probably the hardest day of my life. You might have thought that would have been the day she was diagnosed or maybe that scary time we had during Charlotte’s transplant, but it was today. We snapped this picture below waiting for Charlotte’s doctors to come into her examination room during her standard check up at Duke. Mere minutes later, we saw more than the normal 4 feet in front of the door (the oncologist and NP that would see her). When the door opened and child life was there—Brian and I instantly knew. Child life had come to distract Charlotte so we could talk to her doctors. The world went into slow motion and I don’t know how I didn’t hit the floor if I’m honest. Brian’s face instantly drained of color. We knew immediately her scans had shown her disease, her cancer, had returned.  After all she had been through, all we had seen, all we had survived as a family…this day drained the hope out of me and I can still have a visceral response remembering it. Of c
Read more

Getting some sleep and planning on a wagon ride!

By -
Image
Good morning! They think we might get to a room later today! Steps closer to coming home! Her X-ray showed improvement with lung fluids. Still fighting a fever and needs oxygen. Finally got put back in solids and ate some bites of spaghetti last night. We both slept better last night too. We didn't get out yesterday so maybe today. We have a wagon and are hoping to take her for a ride maybe even to see the helicopter on the roof:) Got a little kick in the gut with some news specifically regarding her tumor genetics. I was really down and having a hard time last night. But woke to a new day. And Brian has a contact in Cincinnati who put him into contact with a leading researcher for high risk NB and after talking with him we feel better about not just our current plan here at Duke but also about all the new research that hasn't even been published yet which has MUCH better prognosis outcomes for someone like Charlotte. I really needed to hear that and the timing of this doctor
Read more