Quick update

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with so many caring and praying and cheering for our Charlotte, I'm so grateful to have this central place to post updates. I am only now catching my breath from today's flurry of activity and information. She is currently napping comfortably and is stable. This morning started with a team of doctors coming in to evaluate. The ICU rapid response team came in to evaluate and consult with our BMT Team. For now, Charlotte's oxygen requirement can be met here in her room. Along with some additional pain management changes and  medications, more tests and an X-ray, and possibly a CT scan later today or tomorrow, the team is leaving no stone unturned. Obvious reasons for her declining respiratory function are being assessed and ruled out. Our hope continues to be that this response is due to several factors combining that can easily be addressed and she would recover from in time. Like a "perfect storm" type scenario where the rhino virus, mucositis, fluid over load, incorrect pain management, etc have all come together to cause her distress. Our doctor discussed all their considerations with us, but they need more time and info before they can determine why this is happening to our little girl.

Just days ago we were talking about discharge and hoping for out patient for Christmas...now I'm praying we don't get moved to the ICU and that she can recover here. I don't care where we are as long as she is getting better. Please God. We can do this and more...as long as she'll be ok. If sheer will and the power of prayer have any impact, then she can do this. Thank you so much for all of your prayers. I know what helpless feels like but I believe in this power and I believe we are making a difference by combining our powers of prayer.
In her own time, she finally agreed to wear the nasal
cannula. She understands this air is her medicine that will help her body get better and we can't go home until we finish all of our medicine.

Not thrilled but amazingly cooperative when home is a motivation and when she's allowed to do something in her own time.

Using a wallow talkie to play bingo today! She's still on isolation but can walk in the hall! We even have a travel oxygen pump ready.

Helping during ultrasound 


Playful!

Playing yesterday while her oxygen tube  "buddies" lay near her

Just Sunday Night...calling daddy. I want to see this smile again

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