Prayers being answered
Charlotte's vitals and stats were stable all night only requiring the low flow oxygen to maintain her requirements. We both slept remarkably well, perhaps out of sheer exhaustion on my part. Today we woke hoping to find some answers to what's going on with our Charlotte. The team ordered a chest CT with contrast to get a more detailed image of her little lungs that are working so hard to breathe these past few days. Your senses sharpen when more invasive tests are ordered because you know that these doctors have seen the best and worse case scenarios. My hope was that they were continuing to be thorough, leaving no stone unturned. One of our favorite nurses who has been with us through the past few days assured me that's what she thought they were doing too. But you always fear they are suspecting or atleast concerned about finding something on the scan or what run it why she's stable? We didn't decline at all last 24 hrs.
They didn't want to sedate Charlotte for the CT scan because it could suppress respiration so I agreed we would try it without. The scan takes 5-10min total but she has to be very still lying down on a moving platform that zips her in and out of the cylinder. Her arms are raised over her cute bald head and I can hold her hands chasing the platform as it moves her in and out. In her typical Charlotte fashion, when she has to do something she doesn't want to do but knows she has to she says "I just need to get a little cry out". And so she did for maybe a minute, quiet sobs as I held her in the wheel chair. I then laid her on the platform and she was still and calm and quiet. Like a statue, I told her. Oh what we ask of this little barely 3 year old. But the spoils are her victory. The scan was clear! Everything checking out healthy with just some minimal fluid outside her lungs. I asked transport to take us the longest way back to the unit because she hasn't set foot or eyes outside of these halls in a month. To her reaction at the fish tank and people and Christmas decorations, you would have thought it had been a year. She became animated and came alive a little more then I've seen in so long. And when we returned, she had a new energy about her. She was happier and light hearted. She had a little field trip outside these walls and tasted the world again and loved it. Anyone can see, she's going to fight her way back into it.
I type this with tears of gratitude and joy. Grateful for each and everyone of you whose voice reached God. Grateful God is protecting our girl. And joyful that most of the scary, major complications feared are being ruled out. We got some additional results testing for various infection (fungal, bacterial and viral) all panning out negative. Our team believes that her body needs time to heal from many different factors that are all pressing in at once. Along with time and proper pain control, she should recover. We will keep praying this is the case so she doesn't need to tackle any additional hurdles then her little body already has. Thank you all so much.
They didn't want to sedate Charlotte for the CT scan because it could suppress respiration so I agreed we would try it without. The scan takes 5-10min total but she has to be very still lying down on a moving platform that zips her in and out of the cylinder. Her arms are raised over her cute bald head and I can hold her hands chasing the platform as it moves her in and out. In her typical Charlotte fashion, when she has to do something she doesn't want to do but knows she has to she says "I just need to get a little cry out". And so she did for maybe a minute, quiet sobs as I held her in the wheel chair. I then laid her on the platform and she was still and calm and quiet. Like a statue, I told her. Oh what we ask of this little barely 3 year old. But the spoils are her victory. The scan was clear! Everything checking out healthy with just some minimal fluid outside her lungs. I asked transport to take us the longest way back to the unit because she hasn't set foot or eyes outside of these halls in a month. To her reaction at the fish tank and people and Christmas decorations, you would have thought it had been a year. She became animated and came alive a little more then I've seen in so long. And when we returned, she had a new energy about her. She was happier and light hearted. She had a little field trip outside these walls and tasted the world again and loved it. Anyone can see, she's going to fight her way back into it.
I type this with tears of gratitude and joy. Grateful for each and everyone of you whose voice reached God. Grateful God is protecting our girl. And joyful that most of the scary, major complications feared are being ruled out. We got some additional results testing for various infection (fungal, bacterial and viral) all panning out negative. Our team believes that her body needs time to heal from many different factors that are all pressing in at once. Along with time and proper pain control, she should recover. We will keep praying this is the case so she doesn't need to tackle any additional hurdles then her little body already has. Thank you all so much.
Keep on swimming little Charlotte, you have the best mommy in the world to look forward to growing with! Praying continues.
ReplyDeleteThese updates are the most important part of our day (and for many others). We type back to you with gratitude and joy. We thank you for sharing so honestly throughout your journey. We are all cheering on Charlotte and your entire family! Our children pray for you all every single night and we love to give them these wonderful updates. Keep fighting Charlotte. The prayers will not stop xoxoxo
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