Prayer Power!
Your/Our prayers worked:) Her blood tests Friday came back negative for the Adenovirus, which is good news and what we hoped for! However since her nasal swabs were positive twice, apparently it isn't necessarily going to clear her for the stem cell harvesting which is scheduled for Monday. We have a consult appointment Thursday with the transplant doctor who would like to examine her and consider all the results, including more from today before he decides if now is the best time to retrieve her baby stem cells that will rescue her bone marrow after all 6 rounds of chemo are complete. Although ideally we are able to harvest them this round, we would rather harvest healthy cells with no infectious contamination so we will trust in the Doctor and see what he says Thursday.
As anticipated, Charlotte's blood counts are down. So she needed and received a blood transfusion at today's appointment. Her color is already coming back and after watching her literally pretend to compete in a gymnastics competition in our bedroom this evening with her brother and sister (complete with somersaults and spins), I guess we can say her energy is restored as well 😂. And you can't believe how she takes her evening shot of growth factor like a complete champion (which helps her white blood cells recover)! She cries and doesn't like it, but she walks over to sit down and sits still without a fight. Brian and I can't get over what a trooper she is with all that is being asked of her. She had a complete melt down at the nurse when she came to swab her nose with this scary suction apparatus again today...and I honestly loved every minute of it. The nurse commented how calm and composed I seem in the face of such a tantrum and I just smiled. You know those secret smiles you can give when you are thinking to yourself. I love seeing her spirit and strength and passion and I don't want her to lose any of it for one second. Not to give in and reside to this lot in life. But to fight and be pissed off and let the world know that she is a force of nature. Of course, a little cooperation is a beautiful thing but you get my jist...she is two and we love to see her act two even though she shows more determination and bravery then any one we have ever known.
As always, thanks for your prayers and positive vibes working magic for our little mighty Charlotte. We will update after Thursday's appointment.
As anticipated, Charlotte's blood counts are down. So she needed and received a blood transfusion at today's appointment. Her color is already coming back and after watching her literally pretend to compete in a gymnastics competition in our bedroom this evening with her brother and sister (complete with somersaults and spins), I guess we can say her energy is restored as well 😂. And you can't believe how she takes her evening shot of growth factor like a complete champion (which helps her white blood cells recover)! She cries and doesn't like it, but she walks over to sit down and sits still without a fight. Brian and I can't get over what a trooper she is with all that is being asked of her. She had a complete melt down at the nurse when she came to swab her nose with this scary suction apparatus again today...and I honestly loved every minute of it. The nurse commented how calm and composed I seem in the face of such a tantrum and I just smiled. You know those secret smiles you can give when you are thinking to yourself. I love seeing her spirit and strength and passion and I don't want her to lose any of it for one second. Not to give in and reside to this lot in life. But to fight and be pissed off and let the world know that she is a force of nature. Of course, a little cooperation is a beautiful thing but you get my jist...she is two and we love to see her act two even though she shows more determination and bravery then any one we have ever known.
As always, thanks for your prayers and positive vibes working magic for our little mighty Charlotte. We will update after Thursday's appointment.
Prayers that Thursday appointment goes well.
ReplyDeleteKeep fighting, sweet girl. We all love you all and pray for you all day long.
PG for this incredibly strong little girl
ReplyDeleteAnd for a mommy and daddy who are just sensational in their care and love and capacity to deal with all of this They are an inspiration And big sis and brother are just great with her and her best medicine
More prayers by this grateful grandparent
Love Her
Thanks very much for the updates! Knowing that she isn't putting up with anything is a very good sign, I can definitely picture you there smiling Jennifer as that was unfolding! Praying for additional negative confirmation tomorrow. Hope you all are enjoying the time home together this week...and Pops is there too which is a huge bonus! The grandparents are all amazing, thank God for each and every one of them!
ReplyDeleteSo glad for you keeping us updated on the blog! We pray for Charlotte all the time!! she certainly is a trooper. Give her hugs for us please.
ReplyDeleteHoping for good news today!!! Come onnnnnn stem cell harvesting! I'm so happy to hear she is keeping her fight. That's a Reynolds for ya😂😊👍🏻
ReplyDeleteI love this!!! Little fighter!! Charlotte the Warior!! She's gonna kick some cancer butt!!! Still praying all the time!! :) Love to All!!
ReplyDeleteBeen praying for good news today! Thinking about you all and praying always xoxoxo
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