postponement

By -
The doctors have decided to post pone the stem cell harvesting by atleast a few days to see if she is clear of this adenovirus. Although she is not sick and is completely asymptomatic, the repeated nasal swab detection means there could be some virus still in her system and is too high of a risk to harvest cells with possible infectious contamination present. If she isn't clear by Monday, then we will plan to harvest next cycle. If after our Saturday and Monday appts she is in the clear, then we will still have time this cycle. Several of you have reached out and said some very reassuring and truthful words recently. You remind us that we just need to trust that these vital cells will be harvested at the best possible time and we remain grateful for the thorough efforts of our medical team at Duke who are taking such good are of our little girl. After initial disappointment, we are now keeping our eyes focused forward on completing this cycle and scheduling the stem cell harvesting at the best optimal time so that Charlotte can continue awe us in her fight to beat this cancer. We thank god everyday we have this chance to help her.

Comments

  1. Kevin SweeneyApril 22, 2016 at 12:27 PM

    Best optimal time sounds about right to me. You all have the right attitude and approach! God continue to watch over you all.

    ReplyDelete
  2. EvansApril 22, 2016 at 6:35 PM

    You guys are in great hands at Duke! They only want the best for Charlotte! So we will continue to pray for the optimal results and wait til the best time for her to get the procedure!! Stay strong and brave, sweet Charlotte!! We love you guys!! ❤️❤️❤️

    ReplyDelete

Post a Comment

Popular posts from this blog

ROUND 2 under way

By -
Image
It was exactly 4 Monday's ago. We left our pediatrician and ended up here at Duke Children's just about this time of day where we were about to receive Charlotte's cancer diagnosis. It was any parents worst nightmare as we came to learn and understand this diagnosis. It feels like 4 months ago. We are still coping and feeling our way, but never in a million years could I imagine being in this "place" that we are today, emotionally and spiritually. We are still coping and going through the grieving stages, but hearing the news today that Charlotte is healthy enough to begin round 2 was great news. A couple weeks ago, hearing that your child needed chemo was gut wrenching but today it is music to our ears. It means Charlotte has recovered from round 1 and is ready to continue to fight and heal while we all cheer her on. Her spunky spirit is back. She had a wonderful, restful weekend home playing with Taylor and Parker and also getting to see some family and a few f...
Read more

A fresh start for round 3

By -
Image
You know those weekends that you just don't want to end? The ones you want to freeze in time? It was a simple one and usually not even worth a mention. Because all we did was spend time together playing at home, saw some friends and family, enjoyed each other, just low key fun and quality time. It was just one of those weekends that we all usually take for granted and really WE SHOULD. I mean, as parents, yes, we all try to soak up the sweet moments and memory making times with our children. But we shouldn't have to relish every moment where our children are feeling happiness. We shouldn't have to soak up every day we can all be together. Or embrace each day our child feels healthy enough for normal play. No one should have to live their entire lives living in the sweet moments for fear it could all be pulled out from under them. But we are learning that this is our new reality. That the normalcy we use to take for granted is now precious time because as we travel down this...
Read more

Reliving June 13

By -
Image
Today in 2019, was probably the hardest day of my life. You might have thought that would have been the day she was diagnosed or maybe that scary time we had during Charlotte’s transplant, but it was today. We snapped this picture below waiting for Charlotte’s doctors to come into her examination room during her standard check up at Duke. Mere minutes later, we saw more than the normal 4 feet in front of the door (the oncologist and NP that would see her). When the door opened and child life was there—Brian and I instantly knew. Child life had come to distract Charlotte so we could talk to her doctors. The world went into slow motion and I don’t know how I didn’t hit the floor if I’m honest. Brian’s face instantly drained of color. We knew immediately her scans had shown her disease, her cancer, had returned.  After all she had been through, all we had seen, all we had survived as a family…this day drained the hope out of me and I can still have a visceral response remembering it. ...
Read more