Clear Scans

By -
Charlottes scans from duke ARE CLEAR! No evidence of disease on any of the 3 scans. We still have bone marrow biopsy results to get next week when we are up at Sloan Kettering because they require a more extensive biopsy in which they will themselves perform in order to enter their vaccine trial, but for today WE CELEBRATE!! She did it. There are no words I can find. Thank you all. Thank you God.

I can't seem to get any pictures or the video of her ringing the bell to upload at this very moment but I will come back and add them! I just wanted to update all of you as soon as I was able to sit down and breath and I knew you all wouldn't mind my mush-emotional-tired-brain and all🙃😄











Ringing the Bell (video link):
https://youtu.be/vb8-dATqrJ0

Comments

  1. Kevin SweeneySeptember 22, 2017 at 7:43 AM

    She is extraordinary! Elated for you all. Continued prayers. #charlottestrong

    ReplyDelete
  2. ppa1dayatatimeSeptember 25, 2017 at 10:57 AM

    So very happy for Charlotte and all of your wonderful family and village! This is the best way to start my week!!!

    ReplyDelete

Post a Comment

Popular posts from this blog

ROUND 2 under way

By -
Image
It was exactly 4 Monday's ago. We left our pediatrician and ended up here at Duke Children's just about this time of day where we were about to receive Charlotte's cancer diagnosis. It was any parents worst nightmare as we came to learn and understand this diagnosis. It feels like 4 months ago. We are still coping and feeling our way, but never in a million years could I imagine being in this "place" that we are today, emotionally and spiritually. We are still coping and going through the grieving stages, but hearing the news today that Charlotte is healthy enough to begin round 2 was great news. A couple weeks ago, hearing that your child needed chemo was gut wrenching but today it is music to our ears. It means Charlotte has recovered from round 1 and is ready to continue to fight and heal while we all cheer her on. Her spunky spirit is back. She had a wonderful, restful weekend home playing with Taylor and Parker and also getting to see some family and a few f...
Read more

A fresh start for round 3

By -
Image
You know those weekends that you just don't want to end? The ones you want to freeze in time? It was a simple one and usually not even worth a mention. Because all we did was spend time together playing at home, saw some friends and family, enjoyed each other, just low key fun and quality time. It was just one of those weekends that we all usually take for granted and really WE SHOULD. I mean, as parents, yes, we all try to soak up the sweet moments and memory making times with our children. But we shouldn't have to relish every moment where our children are feeling happiness. We shouldn't have to soak up every day we can all be together. Or embrace each day our child feels healthy enough for normal play. No one should have to live their entire lives living in the sweet moments for fear it could all be pulled out from under them. But we are learning that this is our new reality. That the normalcy we use to take for granted is now precious time because as we travel down this...
Read more

Reliving June 13

By -
Image
Today in 2019, was probably the hardest day of my life. You might have thought that would have been the day she was diagnosed or maybe that scary time we had during Charlotte’s transplant, but it was today. We snapped this picture below waiting for Charlotte’s doctors to come into her examination room during her standard check up at Duke. Mere minutes later, we saw more than the normal 4 feet in front of the door (the oncologist and NP that would see her). When the door opened and child life was there—Brian and I instantly knew. Child life had come to distract Charlotte so we could talk to her doctors. The world went into slow motion and I don’t know how I didn’t hit the floor if I’m honest. Brian’s face instantly drained of color. We knew immediately her scans had shown her disease, her cancer, had returned.  After all she had been through, all we had seen, all we had survived as a family…this day drained the hope out of me and I can still have a visceral response remembering it. ...
Read more