Charlotte is feeling better but her counts are still low and so it's a waiting game right now. After 5 rounds of some serious high dose chemo, it is taking her body a little longer to recover. The team doesn't want to discharge her until her absolute neutrophil count (ANC) is at a specific level and climbing. In the mean time, we are grateful to be where we are even though there are times we really want to be back home with our family. The good news is that fever was just 24hrs, cultures all negative, and an open sore that has developed in her bottom area is starting to clear up.
The team rescheduled her CT and MIBG scan for tomorrow afternoon. I don't know if we will have immediate (preliminary) results but my heart is hoping so. Brian and I just want to see the visual of where we stand with this tumor. There is no medical reason to believe the results would cause any backwards thinking as far as the surgery goes...but the worrier in me NEEDS to see that this cancer has not progressed after the last scans taken after the 3rd round of chemo. We have had 2 additional rounds since then. But Neuroblastoma is a smart ugly monster. It can do the unthinkable and so we are asking for our village to pray with us that her scans continue to show improvements that help to create a safer and "easier" surgery come July 14. That this cancers progress has continued to be both halted and killed. That we continue to "keep going, keep moving" forward on our course. And that our sweet girl continues to have the arms of God wrapped around her as her physical body is being hit by "everything including the kitchen sink" to quote our own oncologist. She is doing remarkable things. And her spirit continues to exude confidence and strength as we gear up for this next milestone. Thank you so much for sending your prayers and positive vibes up for our little girl. They are being felt and heard.
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| Who is sick? Bubbles! |
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| Duke pediatrics chose this picture of Charlotte to be the cover of there webpage:) |
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| Who needs a paint brush when you have a car. Getting creative and messy in art! |
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| Daddy time makes everything better |
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| Icecream and a movie |
Another rainbow
A couple days before she was admitted, cousin time with Evan!
More prayers for this special child
ReplyDeleteFor healing , great test results , and a successful surgery
Be strong dear one. Keep fighting
We can beat this beast
Prayers
Love you
Pops
God Bless you Charlotte. We are continuing to pray for you out here in Arizona! We will pray extra hard for these next big events, not only for you and the results, but for God to be with the surgeons to guide them and be with them during Charlottes surgery! Aunt Debbie & Uncle Chuck
ReplyDeleteBy the way, you take cute pictures!! How about you being the Cover Girl for Dukes Pediatrics webpage....WOW... You are so cute!! XXOO
ReplyDeletePrayers today and always. Love you all. Charlotte is so inspiring. Keep going, keep moving! #charlottestrong
ReplyDeleteMany many prayers!!
ReplyDeleteprayers going strong for precious Charlotte all at Duke's Children's hospital and the Reynolds' family village!
ReplyDelete