Charlotte's Journey

A day full of good news! Thanks so much for keeping Charlotte’s special friend in your prayers everyone. This friend has been a member of our own village, caring and praying for our Charlotte all this time and then, she became her preschool teacher this year. Ms. Courtney, although still facing a long healing process, should make a complete recovery as the pathology report has returned as a rare but BENIGN tumor which was successfully, surgically removed! This is amazing news for our caterpillar class teacher who is so loved and cherished by our girl Charlotte, as well as by so many people. What an incredible outcome for her and her family.  We’ve learned that Jacob, who was the first Neuroblastoma child and family we ever met during treatment who has been a bit ahead of Charlotte in treatment but whose cancer had been more stubborn in response to therapy, also received good news this week. At his last scans, a spot showed up in his chest indicating potential relapse. The do...

There is a very special person and daily friend in Charlotte’s life who could use our prayers today and in the next days to come. Suddenly, her and her family’s world has come to a hault as they processs a familiar feeling that Brian and I know all to well, the feelings that come from a doctor telling you they’ve found a tumor. Just a couple of days ago they found a brain tumor after she went to the doctor experiencing some concerning symptoms. Today, the doctors will perform surgery to remove this tumor. There is hope that this tumor is benign and that a full recovery, although long and maybe difficult at times, is very possible. They will know more once a biopsy and test results return. In the meantime this family is seeking  prayers as they hold onto this hope. This friend of Charlotte’s means so much to her and to our family, can you please join us in prayer, lifting them up as they face the unknown and with the hopes that TODAY is DAY ONE of  complete healing? We know we ...

My heart seems to be bursting and breaking. Is it possible to have your heart burst with joy and pride while simultaneously breaking from loss? But honestly I know the bursting will win out. How can it not, this is Charlotte we are talking about! I registered this sweet one for Kindergarten this week. She is ready for the next step but Brian and I are just trying to keep up. Especially me. I’ve been home with my babies for 8 years, ever since Parker was born. Staying home and caring for our little ones has been my focus and my world for so long. Charlotte going off to school ends that era, the most important and special era I never knew I’d love so much. So the “breaking” part is purely personal, purely inward and a little selfish, but I know totally natural. And it’s CHARLOTTE to top it off, which makes the bitterness of the sweet so poignant. She deserves every second of every milestone of growing up. She is ready and excited for it. Brian and I will catch up, I will figure ...

If we could all have 1/10th the joy she finds in the every day, life would be PERFECT wouldn’t it? Her energy and spirit is contagious. I have nothing special to update, but today I took a couple snap shots of her and thought maybe we could share a smile to all of you out there. She is ringing in 2019 feeling so great. We have scans in 5 weeks, second week of February. We register Charlotte this month to begin Kindergarten in this next school year...and with that realization, I am doing my best to soak up this last bit of the year home with her. And I’m not the least bit ashamed to be selfish about it either😜. Keep the love and prayers going you all. We truly feel them raining down on our girl. Joy And some Italian Ice today with her Taylor and Parker

What started as a carepage aimed at keeping friends and family updated on Charlotte shortly after diagnosis has evolved. I didn’t even write on this page for the first few weeks. A friend of ours would write updates after receiving a text from me. Soon, I began to take over and write daily and weekly updates. Things were happening so fast. And we realized that we weren’t only creating a space to provide facts about how Charlotte was doing, but we were helping to create a community we would soon call our “village” in which love took root and people from all over would join one another (unbeknownst to each other) in prayer for our girl and our family. Many people have told me their lives have been changed for the better in various ways all because of Charlotte. And although the intention of this page is centered around our girl, the spirit of it is broader now. How many other people have we asked you to pray for with the wondering that maybe somehow our village we have amassed on this jo...

THANK YOU for your prayers for Poppy everyone. Schuey andNeal, as do Brian and I, believe in this power and they have felt it first hand once again. It looks like Neal is making a full and quick recovery. He is now back home even and we drove the 2 hour easy stretch for a quick visit and couldn’t believe it when he answered the door! Knowing he is still recovering, we didn’t stay too long and brought our brood back home for bedtime. We wanted to let you know and to thank you all once again for surrounding our family in prayer this Christmas season and always. As for our Charlotte, she is doing amazingly. She is vibrant, full of life and energy, enthusiasm and pure joy. She is truly funny, but also we can see such a tender and generous nature developing within her. She often relays profound wisdom coming from a space within her that has to be God sent.  She had a wonderful Christmas home here with her Taylor and Parker and Brian and I. Every season feels like such an amazing bless...

Charlotte, Parker, and Taylor’s grandfather Neal, whom we lovingly call Poppy, has been hospitalized. We don’t know anything yet but I knew if I reached out to Charlotte’s prayer village, you would all lift him up just as you have done so many times before. I have seen the power of your prayers. Yesterday, Neal was reminded of Charlotte during a part of one of her hospital stays, and he pulled out her picture and remarked out loud “Charlotte will help me me be strong.” This man and his wife, Schuey (Brian’s mom Nana Schue), packed up their whole world’s and moved here for a year while Charlotte was battling cancer. They helped care for Taylor and Parker and our dog Lucy and helped with many other things so that Brian and I could focus on Charlotte during all those months in patient. We remember spending Christmas Eve and Christmas in the hospital with her. And now Poppy needs our prayers. Lord we trust even when it is so hard, when there are no answers or rhyme or reason. Please help t...