Thanking God!

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Hiding the rock to spread hope

Incredible rainbow in our backyard the evening we got scan results in!


Our friend and neighbor Amy G took this one and sent us a message to let us know there was a rainbow in our neighborhood. We would have missed it were it not for her!




First off...we got a backyard rainbow tonight as we sit here celebrating this news! Incredible! (Pictures later). Thanking God. Charlotte’s scans are CLEAR🌈🌈🌈Her labs look great. There is no evidence of disease one year post treatment. This is a HUGE milestone for a child with stage IV Neuroblastoma. Recently, I’ve gotten asked how long Charlotte will be monitored for. Although it’s hard to believe that this cancer could rear its head again, children like Charlotte can respond to therapy and be cleared of disease only for it to reoccur. She is at risk for another 4 years. After 5 years clear, relapse is almost unheard of and that’s when we could start using the word cured. With that said, every scan that is clear greatly improves her chances. The farther out of treatment you get, the better your odds with relapse being more common in the first year after remission. We have met families whose children are battling this cancer again after being clear for 1 year, 2 years, even 3 years. It’s a heartbreaking reality but...today we celebrate this HUGE milestone.

After a long day at the hospital including 2 straight days being sedated for scans, on our drive homie today after being at Duke from 9-3:30 including her missing breakfast and lunch, I asked her what she wanted to eat when we got home. She asked for 2 of her favorites: a ham, mustard, onion sandwich with a side of pickle, and a waffle. So ham sandwich and waffles it is to celebrate!

Finally, yesterday we found a painted rock (pictured below). I spotted it hiding under a bush just outside of Duke while Brian and I went for a cup of coffee while Charlotte was back having her long MIBG scan. It felt like a god wink, a good luck blessing. Here she is today, after getting our scan results, rehiding (in plain site😆) the smiling rock. Here’s to hoping it spreads joy, hope, and good luck to someone else here at Duke Children’s.❤️🌈

*pictures won’t load at the moment so promise to update those

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