Brian's going OVER THE EDGE; change in plans again
Brian is going Over the Edge:)
As you know, one of our many blessings has been to have Duke Children's in our backyard as our Charlotte has been in their caring hands. We are forever grateful so when we learned of this fundraiser for Duke Children's, we jumped at the chance to help give back...not to mention Brian has always wanted to rappel down a building! Check out his page below and if you are able to give, know it is going to an amazing place, doing amazing work for not only Charlotte but for children all over the world, including research that can reach children globally. And thank you to those who have already supported Brian in this fundraiser. We are so grateful for all your generosity. We will share his adventure with you come Oct 13!
This week our doctors up at MSK in NYC actually asked us to come there for her appointments before we reschedule her scans at home hospital of Duke Children's so, she and I are hopping a flight to NY this Wednesday returning Friday courtsey of another amazing organization, Corporate Angel Network! (Otherwise known as according to Charlotte as "the food plane" haha!) Corporations that have open seats on their private jets will fly children like our Charlotte to cities near hospitals for treatment or other appointments. It's like hitch hiking a ride on a G6! It's amazing and we are so grateful. We haven't often had available flights match our needs but this time it has worked out. Charlotte will have her final injection for the trial, lab work ups, a 4 point/location bone marrow biopsy, and a few other appointments with their Long Term Survival team (such as an EKG to keep an eye on her little heart that has been worked so hard during treatment). So....we hold our breaths for another week and tackle NY first and then she will have scans and work ups at Duke the following week on 10/9-10/11. That will be a big week with lots of results from scans AND bone marrows which will let us know where we stand against this disease one year out from treatment. Keep those prayers coming you all. She is looking and feeling so great, it's hard to even imagine there could be an invisible battle occuring inside of our girl. But we know what we are up against, just as certain as we know God is right here with us leading our way.
Link to Brian's fundraising page below. Thank you so much, amazing village of ours. (Also, more wish trip pictures and details to come. There is so much to say about that trip and I need to carve out time)
http://dccc.convio.net/site/TR/Peer-to-peer/OverTheEdge?px=1281772&pg=personal&fr_id=1504
As you know, one of our many blessings has been to have Duke Children's in our backyard as our Charlotte has been in their caring hands. We are forever grateful so when we learned of this fundraiser for Duke Children's, we jumped at the chance to help give back...not to mention Brian has always wanted to rappel down a building! Check out his page below and if you are able to give, know it is going to an amazing place, doing amazing work for not only Charlotte but for children all over the world, including research that can reach children globally. And thank you to those who have already supported Brian in this fundraiser. We are so grateful for all your generosity. We will share his adventure with you come Oct 13!
This week our doctors up at MSK in NYC actually asked us to come there for her appointments before we reschedule her scans at home hospital of Duke Children's so, she and I are hopping a flight to NY this Wednesday returning Friday courtsey of another amazing organization, Corporate Angel Network! (Otherwise known as according to Charlotte as "the food plane" haha!) Corporations that have open seats on their private jets will fly children like our Charlotte to cities near hospitals for treatment or other appointments. It's like hitch hiking a ride on a G6! It's amazing and we are so grateful. We haven't often had available flights match our needs but this time it has worked out. Charlotte will have her final injection for the trial, lab work ups, a 4 point/location bone marrow biopsy, and a few other appointments with their Long Term Survival team (such as an EKG to keep an eye on her little heart that has been worked so hard during treatment). So....we hold our breaths for another week and tackle NY first and then she will have scans and work ups at Duke the following week on 10/9-10/11. That will be a big week with lots of results from scans AND bone marrows which will let us know where we stand against this disease one year out from treatment. Keep those prayers coming you all. She is looking and feeling so great, it's hard to even imagine there could be an invisible battle occuring inside of our girl. But we know what we are up against, just as certain as we know God is right here with us leading our way.
Link to Brian's fundraising page below. Thank you so much, amazing village of ours. (Also, more wish trip pictures and details to come. There is so much to say about that trip and I need to carve out time)
http://dccc.convio.net/site/TR/Peer-to-peer/OverTheEdge?px=1281772&pg=personal&fr_id=1504
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