Prayer requests

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There are 2 children back in their fight against Neuroblastoma that lay heavy on my heart today and if those of you in our own village could please take a moment to lift them up in prayer as they both await scan/biopsy results today? 

 Azalea is the little girl Charlotte made a couple videos for to help her take her oral medication that accompanied this vaccine trial. Charlotte helped cheer her on as Azalea was afraid of this medication. She was about to get her final injection when the team discovered she has relapsed after almost 2 years clear. Lincoln is a little boy the same age as Charlotte who we also met up at MSK in NYC. He was going through the antibody treatment up there when the team discovered he relapsed and is back in treatment getting more chemo, but new symptoms have suddenly appeared and the team has ordered an MRI of the head for fear his disease has progressed. 

 At the moment, Charlotte is carrying on in life as she damn well deserves while Brian and I are in talks about another potential trial/study Charlotte may benefit from. We want to be “all done” with treatment so badly, but we don’t want it to be for selfish reasons. We want to be sure we leave nothing within reason on the table. That we leave no room for this cancer to return in our baby girl. Stage IV Neuroblastoma is a complex, sneaky monster. We need prayers we make the right choice.

  I don’t know when our hearts and minds will truly rest comfortably. But I do know where we are right now is a BLESSING. I wish this for these families too. Thank you for including them in your prayers today. They really need it as they await whay lies ahead for their children.

Recent picture of Azalea


Lincoln just got his hearding aides and moments later said "Mommy!  I can hear the breeze!"

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