Charlotte's Song

By -
I would never want to change one part of this last year and a half. What a strange thing to say, isn't it? I mean who wouldn't want to go back and take away what Charlotte had to go through. Why wouldn't I want to change this last year and a half so that she didn't have to fight every single day to grow up? Today, we were driving in the car to run a simple errand and she began to sing me a song. That song rang throughout every fiber of my being. It was set to the tune of "You are my sunshine, my only sunshine" except with her words of love. She sang I love my mommy, I love my daddy. She sang about her whole family. If I were to change a single thing about this last year, I would change the journey who has helped shape who she is. I would never want to change a single thing about her. To change her story, is to change her. Just listen to her. She is pure love

After a few moments of hearing her song, I hit voice memo record and it actually recorded her on my cars blue tooth! What?! Isn't technology amazing?! I snagged a few photos from my phone for a mini slide show set to her song. It was too sweet not to share so here it is below

Charlotte's Song

Oh and after favorite people, her big sister Taylor and big brother Parker, left for school this morning, she was feeling a little down. Her belly has been feeling pretty yucky and I also could tell she wished they could stay home with her this morning or that she could go off with them. I found her alone in the guest room staring at the wall. She said "look mommy! A rainbow!" God sent her a morning light rainbow. And off she went to play



Morning light rainbows--there were 3 of them! One for each of our gifts from God

My helper at the store today

Singing Beauty and the Beast and playing in her new dress up corner we created.

While she way playing yesterday, I fielded a phone call from The Make A Wish Foundation and they would like to grant Charlotte a wish within the next year or 2❤️

Comments

  1. ppa1dayatatimeJuly 25, 2017 at 6:35 PM

    OMG...Jennifer...I just listened to the song and watched the slideshow. Major tears, happy tears. Thank God for your keen seizing of that moment and yes, for technology, and definitely for the power of music to bring people together and most importantly right now, I thank God for Charlotte's Song. I think of my daughter, 16.5 yrs. old today, and I am hopeful Charlotte will enjoy her sweet 16th one day too! xoxoxoxoxoxoxxoo

    ReplyDelete
  2. UnknownJuly 26, 2017 at 9:01 AM

    I LOVE THAT SONG!!! It's no surprise how much Charlotte loves her family. You are all amazing. And she's right, her Dad is awesome! Love you all. :)

    ReplyDelete
  3. LindaJuly 27, 2017 at 1:28 AM

    Oh my gosh.....I am speechless....that was the BEST video and song ever!!!! She is just so special and such a gift from God. And Jen....you have such a beautiful way in sharing Charlotte's story allowing so many to be a part of her journey. I am very proud of you, Brian, Taylor and Parker. I do know how hard this has been but you all have weathered through some difficult times and handled them with grace, dignity, love and strength. I am looking forward to many more rainbow sightings. LY❤️❤️

    ReplyDelete
  4. UnknownJuly 30, 2017 at 4:57 PM

    Whenever I need a lift, all I have to do is listen to Charlottes Song. To say she is a special gift to all of from God is an understatement! So happy things have been progressing in a positive direction. We continue to pray for Charlotte and all the family! Hugs, Aunt Debbie

    ReplyDelete

Post a Comment

Popular posts from this blog

ROUND 2 under way

By -
Image
It was exactly 4 Monday's ago. We left our pediatrician and ended up here at Duke Children's just about this time of day where we were about to receive Charlotte's cancer diagnosis. It was any parents worst nightmare as we came to learn and understand this diagnosis. It feels like 4 months ago. We are still coping and feeling our way, but never in a million years could I imagine being in this "place" that we are today, emotionally and spiritually. We are still coping and going through the grieving stages, but hearing the news today that Charlotte is healthy enough to begin round 2 was great news. A couple weeks ago, hearing that your child needed chemo was gut wrenching but today it is music to our ears. It means Charlotte has recovered from round 1 and is ready to continue to fight and heal while we all cheer her on. Her spunky spirit is back. She had a wonderful, restful weekend home playing with Taylor and Parker and also getting to see some family and a few f...
Read more

A fresh start for round 3

By -
Image
You know those weekends that you just don't want to end? The ones you want to freeze in time? It was a simple one and usually not even worth a mention. Because all we did was spend time together playing at home, saw some friends and family, enjoyed each other, just low key fun and quality time. It was just one of those weekends that we all usually take for granted and really WE SHOULD. I mean, as parents, yes, we all try to soak up the sweet moments and memory making times with our children. But we shouldn't have to relish every moment where our children are feeling happiness. We shouldn't have to soak up every day we can all be together. Or embrace each day our child feels healthy enough for normal play. No one should have to live their entire lives living in the sweet moments for fear it could all be pulled out from under them. But we are learning that this is our new reality. That the normalcy we use to take for granted is now precious time because as we travel down this...
Read more

Reliving June 13

By -
Image
Today in 2019, was probably the hardest day of my life. You might have thought that would have been the day she was diagnosed or maybe that scary time we had during Charlotte’s transplant, but it was today. We snapped this picture below waiting for Charlotte’s doctors to come into her examination room during her standard check up at Duke. Mere minutes later, we saw more than the normal 4 feet in front of the door (the oncologist and NP that would see her). When the door opened and child life was there—Brian and I instantly knew. Child life had come to distract Charlotte so we could talk to her doctors. The world went into slow motion and I don’t know how I didn’t hit the floor if I’m honest. Brian’s face instantly drained of color. We knew immediately her scans had shown her disease, her cancer, had returned.  After all she had been through, all we had seen, all we had survived as a family…this day drained the hope out of me and I can still have a visceral response remembering it. ...
Read more