Biopsy results🌈

Our team called this morning to tell us Charlotte's bone marrow biopsy results are negative. No evidence of any Neuroblastoma. This time last year, we just found out there was a huge inoperable abdominal tumor that had spread all throughout her abdomen, surrounding major arteries like her aorta and pushing up against all her major abdominal organs. It was snaking its way up towards her lungs. It had metastasized into her lymph nodes and 30% of her bone marrow was cancer. Her chances of responding to the standard course of treatment was a coin toss: 50/50. Her prospects looked so bleak in those early days I can still remember trying to stand to face each hour... we could hardly even breath. Today, she has no signs of cancer. In a few days, we will be back in the hospital to begin 6 months of immunotherapy to help her body destroy any microscopic disease and stay cancer free. Relapse rates for Neuroblastoma are devastating. We know we still have so much more fighting to do so she can grow up. But look at how far she has come! This little one you have all surrounded in love and prayer for all this time continues to show us Gods wonders. We have gotten a shot gun seat to a miracle. And no matter where her story goes as it continues to unfold, I will continue to document her journey as a witness to this gift she is giving us.

In the same breath that I rejoice, I also want to update you all on our Pastor Amanda's baby son, Owen, who I had written about last week. Duke has determined the brain tumor is a very rare and aggressive cancer, AT/RT. They will soon be learning about what steps to take next but for now they are trying to celebrate a successful tumor removal and apparent improvements in their baby. God sent them a huge and beautiful vertical rainbow Saturday night directly outside of his hospital room window at Duke...a view we recognize all too well. Gave me chills! Let us hold them close as they cope with this diagnosis and learn about what they are up against to heal their baby boy. They have already amazed me with their faithful attitudes at this early stage. They are leaning into their faith and letting themselves be led by this faith instead of by their sight. After all, we can never understand Gods plan. And honestly, what I've learned is that everything is just better if instead of trying to make sense of it all, we just trust. This, of course, is still a work in progress...thanks so much for adding little Owen and his parent to your prayers as they begin this difficult yet strangely awe inspiring and rewarding journey

This time just a year ago

The cutest game of hide and seek ever. "Mom I camouflaged!" 😂 

One of the most beautiful rainbows seen a couple days ago in Wintergreen by a village member and sent to Brian❤️

After we got Charlotte's scan results last Friday, I was driving home and started feeling around for a stick of gum. While stopped in traffic, I opened my arm rest compartment to look and I instantly saw the St. Baldricks button Brian got when Charlotte was just 6 months old. This was the year he raised money and shaved his head. We never could have imagined the money raised could benefit one of our own children. It has been in this car compartment unseen for 3.5 years! I go in there from time to time and have never seen it. The day she got clear scans, it was there clear as day. It was found sitting next to a spare Charlottestrong bracelet. It was another sign, another message from God. He is with us at every step and every turn. He continues to wow and awe us while on this journey❤️🌈