A rainbow we almost missed

By -
After the snow clouds cleared yesterday and the sun began to shine, I looked for a rainbow. It was Charlotte's first day of radiation and I tend to look to the heavens for hope and reassurance when I need it. But God sends us rainbows often when we least expect it. After round 2 of radiation today, Charlotte and I explored the city. We went to a park (where she said it was as cold as Arendale lol), then we found a good pizza restaurant and a bakery near our apartment. When we opened the bottle of her juice at the restaurant, my breath was taken. An unexpected rainbow was there in the message within the lid! Afterwards we walked next door to the bakery and Charlotte shouted "rainbow cake mommy!" I replied "oh I don't know if they would have a rainbow cake honey and let's  just get a small treat not a whole cake..."as my voice trailed off because there on the counter was this beauty. A rainbow cake. God is with us. Rainbows continue to follow our baby girl

My goofy date


I so love this little girl


An unexpected rainbow at dinner 

Found a bakery down the street



Rainbow cake 

My beautiful date in philly tonight! 

Tea party today with mommy

She mostly wanted to dunk the tea bag repeatedly 

We didn't last long at this park! It's so cold here! Charlotte said it's like "Arendale" 😂 


Playing in the waiting room before round 2! She seems to be tolerating these 5:30 am wake ups just fine! Wakes up happy and ready for her morning. She did verbalized for the first time today that her fear is when they take her to the room where she will be put under anesthesia. She told me that she doesn't like her eyes to go fuzzy and then everything is dark. This almost put me over...I hoped she didn't have this sensation but she does. The team here is formulating a plan to help the anesthesia process be less upsetting for her. 

Comments

Post a Comment

Popular posts from this blog

ROUND 2 under way

By -
Image
It was exactly 4 Monday's ago. We left our pediatrician and ended up here at Duke Children's just about this time of day where we were about to receive Charlotte's cancer diagnosis. It was any parents worst nightmare as we came to learn and understand this diagnosis. It feels like 4 months ago. We are still coping and feeling our way, but never in a million years could I imagine being in this "place" that we are today, emotionally and spiritually. We are still coping and going through the grieving stages, but hearing the news today that Charlotte is healthy enough to begin round 2 was great news. A couple weeks ago, hearing that your child needed chemo was gut wrenching but today it is music to our ears. It means Charlotte has recovered from round 1 and is ready to continue to fight and heal while we all cheer her on. Her spunky spirit is back. She had a wonderful, restful weekend home playing with Taylor and Parker and also getting to see some family and a few f...
Read more

A fresh start for round 3

By -
Image
You know those weekends that you just don't want to end? The ones you want to freeze in time? It was a simple one and usually not even worth a mention. Because all we did was spend time together playing at home, saw some friends and family, enjoyed each other, just low key fun and quality time. It was just one of those weekends that we all usually take for granted and really WE SHOULD. I mean, as parents, yes, we all try to soak up the sweet moments and memory making times with our children. But we shouldn't have to relish every moment where our children are feeling happiness. We shouldn't have to soak up every day we can all be together. Or embrace each day our child feels healthy enough for normal play. No one should have to live their entire lives living in the sweet moments for fear it could all be pulled out from under them. But we are learning that this is our new reality. That the normalcy we use to take for granted is now precious time because as we travel down this...
Read more

Reliving June 13

By -
Image
Today in 2019, was probably the hardest day of my life. You might have thought that would have been the day she was diagnosed or maybe that scary time we had during Charlotte’s transplant, but it was today. We snapped this picture below waiting for Charlotte’s doctors to come into her examination room during her standard check up at Duke. Mere minutes later, we saw more than the normal 4 feet in front of the door (the oncologist and NP that would see her). When the door opened and child life was there—Brian and I instantly knew. Child life had come to distract Charlotte so we could talk to her doctors. The world went into slow motion and I don’t know how I didn’t hit the floor if I’m honest. Brian’s face instantly drained of color. We knew immediately her scans had shown her disease, her cancer, had returned.  After all she had been through, all we had seen, all we had survived as a family…this day drained the hope out of me and I can still have a visceral response remembering it. ...
Read more