Confetti 🎉

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She did it. We woke to really good numbers with a great improvement in her clotting factors. And one of her tests returned negative for what the team had suspected as a rare acquired hemolytic Autoimmune disease. They have decided since she is clinically stable, we can investigate her strange red blood cell situation as out patient. So for now, just want to share a few very happy pictures of our girl getting her well deserved confetti parade. To say we are emotionally overjoyed and exhausted is an understatement. So for now, we will bask in her moment and recognize God answering all of our prayers. We are so humbled and blessed. We have moved into the out patient apartment while she is in out patient care with clinic appointments every day (including weekends) and once those taper off as her needs decrease then we can bring our girl home. Her prize has always been home with her family.  Thank you all for your fierce love, encouragement, and prayers.
Confetti parade





Nana Schuey was there

With Dr. Driscoll 


Charlotte's thinking "I don't know about you but I'm out of here"

3 different friends messaged that they saw a rainbow today ❤️️

And they were vertical!

She also earned a nice queen size bed to sleep on! Naptime 

Yesterday, Charlotte and a little friend, Austen, who  is 5 and I believe reminds her of Parker riding together. They are as close as friends can be in a place like this where they can hardly play or spend much time together. He often checks on her and she loves to see him . It is clear that their mere presence is a comfort to one another. 

We will pray for Austen  and his family, hoping to see them in out patient clinic one of these days 

Yesterday, we played in the lobby and met daddy for lunch

Lunch with daddy

Just a shot of her drawing. She likes to make concentric circles 

Comments

  1. UnknownJanuary 5, 2017 at 7:53 AM

    Go Charlotte!!! Love seeing all the smiling faces in these pictures. XOXOXO

    ReplyDelete
  2. UnknownJanuary 5, 2017 at 5:42 PM

    What joy!!! Way to go Charlotte !! Just keep moving .
    Thank you so much for sharing Charlotte's confetti parade.

    ReplyDelete
  3. Amy ElizabethJanuary 6, 2017 at 12:18 AM

    Wow! This is great news! Cheering you all on!

    ReplyDelete

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