Let the hurdling begin
Knowing there will be hurdles and praying they don't turn into mountains, we conquer one thing now to have something else pop up. But we can tell this is how it will be going through this. She has finished the around the clock bathing every 4 hrs so yay! The first chemo is finished and today was day 2 of the next chemo, Cytoxin. We finished the last bath this afternoon. These baths were not pleasant baths by any means but quite upsetting because we don't want her soaking in the chemo we are washing off her skin so basically they are just spray downs with the shower head and soapy scrubbing with wash cloths. But I like progress so we shout "MISSION COMPLETION!" and check that off our list. Those that know me know how I love checking things off lists ha! And now that we don't have to bathe twice in the middle of the night she can get a full nights sleep...perhaps.
Unfortunately, nausea has begun and also a low grade fever this afternoon. She is having trouble keeping down her food (although she still attempts to eat). And now we sit and wait to see if this 101 fever goes anywhere. God please let us clear the hurdles we know we must face and avoid the difficult mountains so that she can use her energy to focus and fight to get better instead of having to conquer additional obstacles. Your prayers made such a different in our lives and in her progress. We truly believe in this power and we need it now more then ever. Thanks for taking the time to think of our girl, sending your positive continuous streams of consciousness our way. We feel every prayer and absorb every thoughtful message you send our way. I know we haven't even scratched the surface of what she's about to go through in this unit. Brian and I pray everyday for the strength to watch this little person we love most, this little person we made, this person we promised to protect and nurture endure what no parent should ever have to. And I pray to stop asking why. Brian and I do have lots of hope and confidence, and we are finding strength and peace when we need it but there is not a day that goes by as we watch the world keep spinning that I don't think "there was once a time that our child didn't have cancer either." Somehow we blinked and here we are. And we continue to pray that we can accept this calling when many days all I want to do is scream at the top of my lungs and scoop up my little family of 5 and run away. But running won't change her path. This is her path. And so it is our path. And faith means believing it is so; that we were made with all the tools and skills needed to conquer this regardless of any hurdles or mountains we find in our path.
Posts will slow down soon once we get in the swing, but I wanted to keep all who care for our Charlotte up to date as we begin and also share some more pics of her first few days here
Unfortunately, nausea has begun and also a low grade fever this afternoon. She is having trouble keeping down her food (although she still attempts to eat). And now we sit and wait to see if this 101 fever goes anywhere. God please let us clear the hurdles we know we must face and avoid the difficult mountains so that she can use her energy to focus and fight to get better instead of having to conquer additional obstacles. Your prayers made such a different in our lives and in her progress. We truly believe in this power and we need it now more then ever. Thanks for taking the time to think of our girl, sending your positive continuous streams of consciousness our way. We feel every prayer and absorb every thoughtful message you send our way. I know we haven't even scratched the surface of what she's about to go through in this unit. Brian and I pray everyday for the strength to watch this little person we love most, this little person we made, this person we promised to protect and nurture endure what no parent should ever have to. And I pray to stop asking why. Brian and I do have lots of hope and confidence, and we are finding strength and peace when we need it but there is not a day that goes by as we watch the world keep spinning that I don't think "there was once a time that our child didn't have cancer either." Somehow we blinked and here we are. And we continue to pray that we can accept this calling when many days all I want to do is scream at the top of my lungs and scoop up my little family of 5 and run away. But running won't change her path. This is her path. And so it is our path. And faith means believing it is so; that we were made with all the tools and skills needed to conquer this regardless of any hurdles or mountains we find in our path.
Posts will slow down soon once we get in the swing, but I wanted to keep all who care for our Charlotte up to date as we begin and also share some more pics of her first few days here
Taylor and Parker came to visit Saturday!
With Nana Schuey and Poppy too! Kids wearing their super siblings medals
Getting a story from poppy. We can have visitors at times!
Parker "I just want to kiss her head"
Hall warrior. Tearing up the halls on the trike. She's really quite fast when she gets a break from her IV pole we call R2D2
Brian's view waking up with her Sunday morning. That smile...
Earlier today playing with a rainbow volunteer in the unit
Our friend Jen's class stopped to cheer Charlotte strong this morning when they saw this at school in Wilmington NC ❤️🌈
Praying, praying, praying so hard. I said a special prayer last night that her fever would come down. Stay strong guys! You are doing amazing. We are with you and cheering you on the whole way xoxoxo
ReplyDeleteGod love you all. We are constantly thinking of you all. Celebrate getting thru each milestone, one at a time, one day at at a time. Praying that your baby girl is kept as comfortable as possible during this time. Keep fighting, Charlotte! Love you. #charlottestrong
ReplyDeleteThank you for the updates and for sharing the power of your prayers with us who are certainly praying for your family and Charlotte's sweet smile to keep shining bright!
ReplyDelete