A milestone for Charlotte

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 Charlotte has hit a huge milestone, village! She was able to have her MIBG scan awake and not sedated! This is a very long scan that takes about 90 minutes and she must lay completely still or else imaging is affected. There are times where the camera comes very close to her face, but the majority of the time she can turn her head and watch a movie! What this means for her is that going forward, she will be able to eat and have zero recovery that influences the rest of her day! One of her motivators, besides getting breakfast, was knowing she could go outside and play as normal without restrictions that are in place after she’s been under sedation. She said “So can I stand up on our web swing with Reid and Isla?” That’s right baby girl! Her love for playing with her favorite neighbor buddies has motivated her❤️These kids play either at recess or after school on the daily🥰She is rocking this! 

As we celebrate this milestone, thank you for sending up those prayers for clear scans! Thank you God🌈#charlottestrong #charlotterules




Comments

  1. ppa1dayatatimeDecember 18, 2020 at 11:23 AM

    I've been absent from commenting, but not from reading the updates. I am so incredibly touched by this. BRAVA CHARLOTTE! You are so amazing and powerful and strong! Have fun playing after you scans!!! :-) <3<3

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