Last day of pediatric cancer awareness month

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For the final day of September’s Childhood Cancer Awareness, I wanted to share one of many tough memories. Today, last year, was another hard and scary day. It was Charlotte’s first day of a new specialized immunotherapy called 3F8 she received for her battle against relapsed Neuroblastoma. Today, I want to tell her it’s all over. Today, I want to tell her she’s done fighting and her cancer is gone forever. Today, I want to tell her she will never go through painful treatments again. Because of so many of you out there, those statements are becoming a reality! Amazing new therapies have given her a real chance. But I can’t tell her any of those things today. We have always told her a simple truth. Her simple truth is that we believe she will overcome and beat this damn disease but her reality is she needs help. She needs cutting edge maintenance therapies to help her body, specifically her immune system, to fight any lingering, residual cancer cells that could be hiding, stems cells that could try to re-engage. We don’t know what is driving the Neuroblastoma that returned after all of the treatment she received from 2016-2018. We don’t understand how it survived...no one really does. And so our work is not done. She keeps fighting. And the work of discovery continues thanks to awareness and funding. Thanks for spreading the word this month and for loving our girl always❤️🌈

Sept 30 2019, one year ago today

Recovering from 3F8 on this day last year

Last weekend from top of the highest mountain peak in Eastern USA


She’s our tough cookie. And glory to God for this day and every day. #familystrong

r


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