Band of Parents

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Someone we’ve never met nor never will is matching every single donation dollar for dollar so that families like ours can stay somewhere safe near MSK during their child’s cancer treatment. Due to COVID, RMH is still not accepting new families and now there is a new procedure where we need to come to MSK a day early for Charlotte to be tested for COVID before she can be seen in clinic for the next step of her maintenance therapy. So, Band of Parents (an AMAZING organization that funds Neuroblastoma research at MSK) has helped arrange a dedicated floor for families at the beautiful Marriot Residents Inn near MSK in Manhattan, subsidizing rooms for families coming in for treatment.

Charlotte and I drove up today for her to be swabbed and are now all squared away in our room here. We are so grateful for a safe, close by, and very clean space to stay (although I did wipe down entire room when we arrived as NYC continues to be hit so hard by COVID). Candlelighters of NYC is offering grocery gift cards to families as well. And BOP even gave us a sweet swag bag of goodies at check in. Can I tell you how amazing people here in NYC are? I wanted to share the BOP’s fundraiser (links below) just in case this speaks to any of your hearts as families try to access the needed treatments here for their children while navigating the shut downs due to the pandemic. Charlotte will receive injection 4 tomorrow for the clinical trial she is on for maintenance therapy. Thanks for your prayers and love and support village! We continue to be humbled by the generosity we keep receiving from so many amazing people and organizations. These may be some hard days, but then again HOPE is stronger❤️🌈 #Charlottestrong
Making rainbows here in NYC

Mother’s Day! I may have helped give them life, but they gave me mine! Hard days or simple days, I cherish every single one


https://p2p.onecause.com/bophousing

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