Prayers for a way through
I’ll keep this short because tomorrow will come early and I know I’m going to need my head about me for what is to come.
Brian, Taylor and Parker, AKA the worlds best medicine, came up to visit us over a long weekend! We took in a fun show (Blue Man Group), played in Central Park, and just enjoyed quality time together here at this amazing RMH (my kids need to be pried away from the playroom here). Saying goodbye to each other today was hard on the kids but Brian and I hold onto the fact that if ALL of this goes as we pray, then this could truly be the last time Charlotte needs to be away from home due to treatment for such a long duration. Between all those weeks of inpatient for chemo, months going through transplant, a month in Philly for radiation...all that we thought was behind us, yet now 3 weeks are required here in NYC for the start of this new immunotherapy. We just keep clinging to the thought that this could really be it. It could really be all behind us.
Going forward our stays in NYC over the next 4 months will likely “just” be between 7-10 days long. We can do this. But first tomorrow. Tomorrow will be a hard day. Please hold Charlotte close in your hearts and lift her up in prayer. She will not, can not understand what she is likely to experience. There is a tremendous amount of pain involved and managing it requires a delicate balance of medications. And I will need to dig deep, and remember that through is the only way there. Please God, help carry us through
#familystrong
Brian, Taylor and Parker, AKA the worlds best medicine, came up to visit us over a long weekend! We took in a fun show (Blue Man Group), played in Central Park, and just enjoyed quality time together here at this amazing RMH (my kids need to be pried away from the playroom here). Saying goodbye to each other today was hard on the kids but Brian and I hold onto the fact that if ALL of this goes as we pray, then this could truly be the last time Charlotte needs to be away from home due to treatment for such a long duration. Between all those weeks of inpatient for chemo, months going through transplant, a month in Philly for radiation...all that we thought was behind us, yet now 3 weeks are required here in NYC for the start of this new immunotherapy. We just keep clinging to the thought that this could really be it. It could really be all behind us.
Going forward our stays in NYC over the next 4 months will likely “just” be between 7-10 days long. We can do this. But first tomorrow. Tomorrow will be a hard day. Please hold Charlotte close in your hearts and lift her up in prayer. She will not, can not understand what she is likely to experience. There is a tremendous amount of pain involved and managing it requires a delicate balance of medications. And I will need to dig deep, and remember that through is the only way there. Please God, help carry us through
#familystrong
Our girls
Central Park
Central Park fun
Blue man group!
Central Park fun
My world
We painted rocks during Kindness rocks art night at RMH
RMH together. They found the unlimited 24/7 ice cream freezer
Blue man group was awesome
Man they missed each other
Sailing boats in Central Park
We weren’t sure what to expect when we had to wear these due to our close proximity to the stage at Blue Man Group😂 It was fun!
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