Power of prayer and damn good medicine!!

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I’m so tired (and as you might imagine emotionally drained) so for tonight all I can muster is WHOO HOO we have clear scans!!! After a week where we have never felt more afraid going into scans, and a day that didn’t quite go as we planned, we can at least say we received what we hoped and prayed for. After what felt like holding our breath, Brian and I can take a deep one and rejoice in this news. God is so good. We are feeling grace and mercy like never before. Our girl will keep going. We have a 4 location bone marrow biopsy tomorrow here in NYC to continue her disease evaluations but we believe those will also be negative for Neuroblastoma and we will plan to start this specialized immunotherapy up here in NYC. I promise to write more when my eyes can stay open...so much to say and so much other news I need to share, but for now you all, we breathe. And sleep.

Matching her Minnie. Getting ready for a scan

Comments

  1. Kevin SweeneySeptember 20, 2019 at 7:12 AM

    Amen, the best news! Hope you all got some rest last night. #charlottestrong

    ReplyDelete

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