Family trip to MSK in NYC
Here are some pictures we took of our first visit to memorial sloan kettering in NYC as a family for Charlotte to be evaluated for their Neuroblastoma Vaccine Clinical Trial. We started by driving up to Blacksburg VA for the Hokie game! We drove through WVA and Pennsylvania to NYC where we stayed at what can only be described as the "Disney world" of Ro and MacDonald Houses. Their playroom was even equipped with a huge fully stocked music room! The kids loved it! Video games galore, ping pong, foose ball table, movie screen, lots of crafts and toys. We saw Doug aka Pops for a day on the town to cruise the Harbor to see Statue of Liberty and Times Square (our silly Tshirt day...you can't see Charlotte's but her's says Mic Dropπ). That night, with pops with us, we got the news from her doctors that she was clear as we headed to dinner and a Broadway show! We saw Aladdin on Broadway and the kids loved it. What a special time! We even had a crazy moment where the RMH had a small fire during some construction and we had to evacuate but everyone was safe and we got to watch New York's finest in action where 9 fire trucks pulled up all within minutes! Area restaurants opened their doors to the RMH families and rolled out dinner for us. The RMH is such an amazing organization and they go above and beyond to make it a special place for kids and families. We are so grateful to be able to stay there during our visits over the year. We even got to see my VA family on our way home, stopping to see my Uncle Tim and Aunt Esther's new house, play with cousin Evan, spend some time with Oogie and Nana, and stay over at Grandma and ChooChoos house before heading rest of our way home Sunday. Now to gear up for injection 2 on 10/5. No rest for the weary as we continue to follow to rainbows leading us toward healing our Charlotte. We can do this. She can do this.
On our way
Go Hokies
A bit loud for her at times haha
Our Hokies
A rainbow in Times Square
RMH playroom and music room
MSK has a great playroom too. The children were all often waiting here through the days as we were
Seen. Often we were here 5-6 hours at a time over the week.
Our team. Kids loved taking turns pushing C around in a stroller when she felt like riding
RMH family room
Central Park climbing
Dressed up as "a lost princess who always finds her way"❤️
Asleep in my lap while watching the firemen clear RMH
Statue of Liberty cruise around the harbor
Pops!
At dinner just after we got the good news
Broadway celebration to see Aladdin
Times Square crazy
Playroom fun
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