Scan week again🌈

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 Well village, the week is finally here. The first time we have gone 6 months since scans and Charlotte will have her Duke check up appointments and scans Thursday and Friday this week. Most of you know Brian and I tread water during these weeks with an indescribable feeling in the pit of our stomachs. It’s not because we don’t believe or our faith waivers, but it’s because of what we’ve seen and done and what we’ve watched Charlotte endure and the fear that maybe just maybe it really isn’t all over. Hope is the only thing stronger then fear. 

The last time we pushed scans back even a little was to 4 months in 2019 and the doctors found a new tumor just starting to grow into her femur. It was Neuroblastoma that returned or never died and no one knows where it came from nor where else it might also be hiding. Charlotte beat it back again but standard care is scans for 5 years and this cycle will be 2.5 years off all treatment and 3 years since her scans showed all clear. We are half way there. There is an artist who captures the world of childhood cancer with more grace and truth and poignancy then anything I’ve seen before. I’ve shared his work before but this past week I draw childhood cancer reposted this one during September’s Childhood Cancer Awareness Month and I could close my eyes and see our sweet girl watching the world from her hospital room, dreaming of playing with her brother and sister and friends, praying she too would get to go to school one day, remembering the sun on her face and feeling the wind of swinging. But her reality for a very long time was playing however she could at the hospital-us walking the floors when she was able maybe pedaling a trike and playing bed side with toys and books and crafts. This year when we go to Duke, we will bring some gifts for kids and siblings thanks to all of your donations to Be The Rainbow Foundation.  And with your prayers along side of us, Brian and I will keep on believing all the days in store will be full of the childhood joys we have prayed for for Charlotte, Taylor, and Parker. And that we can keep on being in service to families walking where we have been❤️🌈Thank you God! Thank you for praying our girl “keeps going, keeps moving.”

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