Another step forward

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Today, Charlotte swallowed her FINAL dose of medication that accompanies the year long investigational clinical trial she has completed not once but twice now. (She has been swallowing a very large volume of a very viscous solution for 14 days in a row every 2 weeks on and off for a full year. Many cannot hardly stomach this but she has always taken it easily and has even shared videos of herself swallowing it for other children on this study who struggle in an effort to help and cheer them on). 

Charlotte’s first grade school picture came in recently. Her Kindergarten school picture shows a timid and uncertain little girl straight out of chemotherapy and radiation, who was proud that she made it to school after her world was flipped upside down once again. Her first grade picture shows a confident and self assured little girl who is still proud to be here, thriving and blossoming. Brian wisely told me once how the things you don’t want to happen in life happen very quickly, whereas the things you want, happen slowly and take time. We will keep going as slow and as steady as needed while we continue to help Charlotte overcome and keep moving towards complete healing. Thank you God once again for this day, this chance❤️🌈#Charlottestrong

Finally, keep praying for Elijah. His scans confirmed tumor growth and his cancer is progressing despite new treatment. They are trying to figure out what is still possible. I’ll update more for your prayers when I know more. 


First grade vs Kindergarten 

Easter Morning

Silly girl at the beach for a day trip over her spring break

 Today, Charlotte swallowed her FINAL dose of medication that accompanies the year long investigational clinical trial she has completed not once but twice now. (She has been swallowing a very large volume of a very viscous solution for 14 days in a row every 2 weeks on and off for a full year. Many cannot hardly stomach this but she has always taken it easily and has even shared videos of herself swallowing it for other children on this study who struggle in an effort to help and cheer them on). 

Charlotte’s first grade school picture came in recently. Her Kindergarten school picture shows a timid and uncertain little girl straight out of chemotherapy and radiation, who was proud that she made it to school after her world was flipped upside down once again. Her first grade picture shows a confident and self assured little girl who is still proud to be here, thriving and blossoming. Brian wisely told me once how the things you don’t want to happen in life happen very quickly, whereas the things you want, happen slowly and take time. We will keep going as slow and as steady as needed while we continue to help Charlotte overcome and keep moving towards complete healing. Thank you God once again for this day, this chance❤️🌈#Charlottestrong

Finally, keep praying for Elijah. His scans confirmed tumor growth and his cancer is progressing despite new treatment. They are trying to figure out what is still possible. I’ll update more for your prayers when I know more. 

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