The Band of Parents

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 13 years ago, a group of parents, just like Brian and I, felt helpless and desperate. They asked the Neuroblastoma doctors at MSK what they could do to help their children. That’s when these parents banded together and formed The Band of Parents. They have helped fund what we are praying can help cure our Charlotte: 3F8 immunotherapy and the neuroblastoma vaccine for maintenance. CoVid19 has hurt fundraising efforts. So, Charlotte was asked to help. We sent this video for them to use in conjunction with other children who have benefited from the research they helped fund now for over a decade. They have also helped house us and many others while in NYC (Manhattan) for treatment. Unfortunately, the cure for cancer is....money. Advancements would not be possible without groups like this because federal funding is very limited for pediatric cancer research. Only 4% a year is allocated, which leaves researchers looking for help. I try to imagine sitting in the hospital like they did back in 2007 when survival rates were much lower and children did not typically survive relapse as there were very few options. We feel unbelievably blessed to be in this position today and have a small part in helping this special organization. Although it’s a small thing we’ve been asked to do, Charlotte is doing it with a big heart ❤️(this is just our clips but I will post official video once BOP shares it🌈) #charlottestrong

https://www.bandofparents.org/ (BOP website if you are able to donate, they could use our help as they continue to help save our Charlotte along with many more, and as we are trying to help them)

https://youtu.be/6CuaVCMIlwM (our clips we sent to BOP)


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