Crossing off boxes

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 Charlotte LOVES to cross off boxes on a calendar when counting down to something. The girl loves a calendar. It helps her understand time frames and see the goal or finish line. Yesterday, she got to cross off the last box on her radiation calendar. She did it!

To celebrate, we met friends up at our neighborhood pool for pizza dinner and swimming! She did not want much hoopla but a little fun celebration was in order. Finishing radiation means TODAY was her FIRST FULL DAY OF SCHOOL! Her sweet class waited until she could be there for a frozen yogurt party that they earned too. Her teacher also shared that the principal arranged for Charlotte to have her own laptop in the classroom for when they use the computers during various center rotations. The keyboards are difficult to keep clean with many little hands on them and so they wanted to provide Charlotte this space. We can’t thank the school and staff and kids for all the love they surround Charlotte with every day. She is well cared for when she is there, but I feel a little like a fish out of water without her at times.

Brian and I always said we would have a date day on the day all 3 kids went to school. So today we did! We spent the morning and afternoon together for our date we talked about over all these years. It was the first time in almost 13 years of marriage we had a week day together all day without being on vacation or home on paternity/maternity leave or some special holiday/occasion. Today was a special day and we all really needed it❤️

Charlotte will get some normal days of being a typical 5 year old over the next 7 days as we gear up for her next round of chemo next Thursday, which is also out patient with the same 2 chemotherapies she just had. This could be her last chemotherapy.  Oh God please let this be her last. We will plan for scans after she finishes this 3rd round of chemo and then coordinate with the MSK doctors for going up there for bone marrows and to enroll her on their immunotherapy protocol. Checking of boxes. Crossing them all off one by one. Day by day. Keeping our eyes on the goal best we can. Thank you for continuing to pray for our baby girl and our family❤️🌈

Brave

She asked for hot coco at the refreshment station after her last round❤️


Rode home on the bus for her first time today. Taylor and Parker always looking out for her❤️

Video clip her teacher sent😂 Looks like she’s enjoying letterland fun on her laptop!







Comments

  1. ppa1dayatatimeAugust 9, 2019 at 6:21 PM

    A heartwarming and special day indeed! Big Hugs to all your family!

    ReplyDelete

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